Today is October 19, 2015. Louis Francis Martin died at Samaritan Hospital at 6:45 PM October 19, 1979. I was not present. My mother, brother and his wife, and my sister were by the side of the bed when Louis, the emaciated, toothless, babbling version, with his arms reaching out in the air above him, like he was trying to get the waitress's attention. Breathing slowed to a pace that allowed his soul to move. And then it did.
I was home, sitting in my room. I had gone the day before, October 18 on a solo visit. What I remember from that visit was taking one of Lou's cold hands in mine, and asked him if he knew me. He nodded. And then he said something I didn't get, and that was all.I kissed his forehead and walked out of the room. The next time I saw him was in the casket at the funeral home.
But there were years in between to review. Like 1977. All I can remember about that year was that Jimmy Carter was inaugurated President and then the next day he began his downhill slide to doom, Reggie Jackson hit three home runs in a World Series game,and my mother still worked in Latham. I ended my junior year at Siena, and, after not going to Cape Cod ever again, began my senior year. I had college friends by now and was able to go on dates and have fun, which had been rare. Girls, okay just a few, thought I was funny and kinda cute. This was a revelation. But then I'd go home, and the situation would be the same. We tiptoed around it, and except for the occasional blow up, all would be serene. I'd play some baseball and hang out with a friend whose father was also ill. My friend and I agreed that we would inherit our father's diseases and still visit each other in our wheelchairs. He's in his already. Not my turn yet.
1978. The Red Sox lost to the Yankees in the playoff game at Fenway. I graduated from Siena and did not have a graduation party (maybe by my request, maybe). I have one picture of my parents standing in front of Siena Hall. They are about three feet from each other and have all the emotion of the Royal Guardsman at Buckingham Palace. I had a few pictures of me with friends, and went to dinner with a friend. Lou stopped me on the way to meet my friend told me "I know we don't talk much, but I am proud of you." And I walked away, mumbling something about "too late now."
I was a 21 year old asshole. And I would pay for that, as I should have.
From June 1978 until Lou was hospitalized for the last time, I was his full time caretaker. Christmas 1978 brought a surprise snow storm and we were hitting the shovel and the snowblower for a while, Lou was back in his element of supervising a crisis, but it did not stop me from slamming Lou with a fluff of snow. Instead of a snowball returned toward me, I was given a look that would chilled my blood if I wasn't already freezing. We moved the snow away and went back in the warm house. The idea was for us to go to my brother's home for Holiday dinner. Lou by this time was no longer able to drive and that had been my duty to inform him of this. We got him into his car, passenger side, my mother in the back seat, yours truly driving (yes, I got my license) and we drove on to the snowy streets. Until Lou opened the passenger door as the car was moving, and said "I 'm going to Barbara's (my sister's). She's nice to me.
My mother lost it. She screamed repeatedly "Get in this car! Get in this car!" Lou continued to shuffle along in the snow. I pulled the car over, told my mother to stay in the car, and went after my father. My mother joined me and we got him back in the car, with a promise that we would go to my sister's house right after visiting my brother's family. Lou calmed down some once we got him back in the car and my locked the passenger door. When we arrived at my brother's home family came out to help move Lou around and into the house. There he saw familiar faces of grandchildren and friends long back. We were able to have a decent day and even did get Lou to my sister's. Home and we got my father into bed and then we collapsed. 1979 was going to be brutal. My mother had that far away look in her eyes, she would start feeling depressed and begin the ranting again, this time I was the consumer, and would be for the next 22 years.
The year was brutal. Lou would run away. We'd go find him usually talking to the bus mechanic about how the buses were running. Time became distorted for him and he'd get up and want his breakfast at three in the morning, and if he didn't get his eggs and bacon, the dining room chairs would begin flying. We could soothe him most times. Most times.
Oh, yeah. I can understand why some of you are asking where are the medical people? Lou's doctor gave him some blood pills. The Mental Health unit said they had no reason to think anything difficult was going on, maybe a psychiatrist could provide some meds. For me, sure! I'll take them as I wash Lou's crap off of his butt and clean him up in the shower.
Lou was finally hospitalized in August of 1979 and remained there until he died on October 19, 1979. So he has been gone for 36 years. His death certificate says renal failure, arteriosclerosis, and pre-senile dementia. Lou was a smoker for many years, and working man meat and potatoes guy. No big concern for us, that's all we knew. But from his gut there must have resided many a bad news blood cell waiting for their chance. But there was no heart attack, no stroke. Just this fast decline.
Way earlier I said that my friend and I talked about how we might be when we hit 50. As noted my friend is in a wheelchair and I'm not. Yet.
No, I do have what my father had, but it fits as Demylination Disorder, a sort of MS. My father would fall asleep at the kitchen, and then his muscles would jump. I do. Constant brain fog. Yep. Odd sleep habits. Gotcha. Rawer emotions. True. Pains and numbness of extremities. Oh, yeah. And it showed up around age 55? Like October 9 1975. Lou Martin had just turned 55.
Lou Martin lived 21,561 days. He went to war, came back and raised a family, liked a beer in the summer and his home grown tomatoes. I could have been a better son. I am trying to be as good a person as he was.
As of this day I, Thomas Martin, have been on this planet for 21,560. If dealing with my father's illness gave me any solace was that when my turn came, I'd pull more life out of days and be here. HERE.
I'll let you know Wednesday the 21st how it went.
Showing posts with label symptoms. Show all posts
Showing posts with label symptoms. Show all posts
Monday, October 19, 2015
Thursday, January 22, 2015
Spot the symptom!
Hello and welcome to your favorite MS game show - Spot the symptom! And here's your host, the one thing you need the most, your Brain (B)!
(Polite applause from the non-lesioned part of the audience)
Hi, I'm your brain and first, welcome, and second, legs fold forward, and butt, lower yourself and prepare for contact with a chair. Thanks. Now please say hello to our contestants - the Appendix (A) and the Right Kidney (RK)! (Crowd: applause. )
B: Let's meet our contestants. Right Kidney, what do you do?
RK: Well, Brain, as you know, because you are the brain, I extract waste from blood, balance body fluids, form urine, and aid in other important functions of the body.
Thanks, Right Kidney. And Appendix, what do you do?
A:Nothing. I just sit there between the intestines.
B: OK. There's our contestants. Now, here's our first question on Name That MS Symptom -
"The attack may last from minutes to hours." Yes, Appendix?
A: What is an appendicitis attack?
Flatulence Buzzer! (Crowd: Awwwww)
B: Nope, sorry, appendix. Okay, let's move on to our next question on Name That MS Symptom. "When blood flow returns, the area becomes red and then later returns to normal color." Yes, Appendix?
A: What is a very bad rash?
Flatulence Buzzer! (Crowd: Awwwww)
B: Nope, not this time, Appendix. Joining in Right Kidney? No? OK. Here's our third and final clue. "First, the fingers, toes, ears or nose-" Yes, Appendix?
A: Leprosy. I mean "What is Leprosy?"
Flatulence Buzzer! (Crowd: Awwwww)
B: Sorry, Appendix, that's not correct.
A: Whattaya mean not correct? Those body parts are always falling off lepers. Two thousand years ago you had to kick the lepers out of your village when things started going bad. There always was a leper somewhere to blame and to cast out. I feel for them, you know? I mean I look sideways at the Upper or Lower Intestine, and before I know it, I'm snipped and cast out myself. You don't do anything, they say. We've moved on in evolution, they say. Me and the tonsils, always the first to go. Sad.
B: Thank you for playing, Appendix. Right Kidney, do you have the proper response? The answer was "First, the fingers, toes, ears or nose become white, then turn blue."
RK: I think its Reynaud's Phenomenon? I mean What is Reynaud's Phenomenon?
Dingdingdingdingding! (Crowd: applause from non lesioned part of the audience. Lesioned parts of the audience sit sullen like the opposition party at the State of the Union - because they've forgotten they are still in the Union)
B: Yes, that's right, it's Reynaud's Phenomenon! And no matter how much you put on woolen socks and mittens, it'll still make you miserable, by freezing up fingers and toes. If you're on a beta blocker, like we are in this body, your doctor has to change that prescription. And a note to me, remember when stepping into that warm pool at the Health Center to go very slowly or the hands and feet will burn like red hot chili peppers. OK, that's all the time we have because we've just walked into a room and we have no idea why we did that. I'm Your Brain, and I will get right on that problem, whatever it was. Bye !
A: Sure, kidneys get all the glory 'cause they can be given to somebody else and save lives. Donate your organs, they say. Be a lifesaver, they say. But nooooo, not you, Appendix. Nobody needs another appendix, Appendix. Get back to sitting between the intestines. We'll call you if we need something to burst. Ha-ha, Blah, blah. Might as well get back there and do whatever it is I do, but I wish the intestines would stop throwing so much crap my way. I'm surrounded by it. Sheesh.
(Raynaud's info from NIH)
(Polite applause from the non-lesioned part of the audience)
Hi, I'm your brain and first, welcome, and second, legs fold forward, and butt, lower yourself and prepare for contact with a chair. Thanks. Now please say hello to our contestants - the Appendix (A) and the Right Kidney (RK)! (Crowd: applause. )
B: Let's meet our contestants. Right Kidney, what do you do?
RK: Well, Brain, as you know, because you are the brain, I extract waste from blood, balance body fluids, form urine, and aid in other important functions of the body.
Thanks, Right Kidney. And Appendix, what do you do?
A:Nothing. I just sit there between the intestines.
B: OK. There's our contestants. Now, here's our first question on Name That MS Symptom -
"The attack may last from minutes to hours." Yes, Appendix?
A: What is an appendicitis attack?
Flatulence Buzzer! (Crowd: Awwwww)
B: Nope, sorry, appendix. Okay, let's move on to our next question on Name That MS Symptom. "When blood flow returns, the area becomes red and then later returns to normal color." Yes, Appendix?
A: What is a very bad rash?
Flatulence Buzzer! (Crowd: Awwwww)
B: Nope, not this time, Appendix. Joining in Right Kidney? No? OK. Here's our third and final clue. "First, the fingers, toes, ears or nose-" Yes, Appendix?
A: Leprosy. I mean "What is Leprosy?"
Flatulence Buzzer! (Crowd: Awwwww)
B: Sorry, Appendix, that's not correct.
A: Whattaya mean not correct? Those body parts are always falling off lepers. Two thousand years ago you had to kick the lepers out of your village when things started going bad. There always was a leper somewhere to blame and to cast out. I feel for them, you know? I mean I look sideways at the Upper or Lower Intestine, and before I know it, I'm snipped and cast out myself. You don't do anything, they say. We've moved on in evolution, they say. Me and the tonsils, always the first to go. Sad.
B: Thank you for playing, Appendix. Right Kidney, do you have the proper response? The answer was "First, the fingers, toes, ears or nose become white, then turn blue."
RK: I think its Reynaud's Phenomenon? I mean What is Reynaud's Phenomenon?
Dingdingdingdingding! (Crowd: applause from non lesioned part of the audience. Lesioned parts of the audience sit sullen like the opposition party at the State of the Union - because they've forgotten they are still in the Union)
B: Yes, that's right, it's Reynaud's Phenomenon! And no matter how much you put on woolen socks and mittens, it'll still make you miserable, by freezing up fingers and toes. If you're on a beta blocker, like we are in this body, your doctor has to change that prescription. And a note to me, remember when stepping into that warm pool at the Health Center to go very slowly or the hands and feet will burn like red hot chili peppers. OK, that's all the time we have because we've just walked into a room and we have no idea why we did that. I'm Your Brain, and I will get right on that problem, whatever it was. Bye !
A: Sure, kidneys get all the glory 'cause they can be given to somebody else and save lives. Donate your organs, they say. Be a lifesaver, they say. But nooooo, not you, Appendix. Nobody needs another appendix, Appendix. Get back to sitting between the intestines. We'll call you if we need something to burst. Ha-ha, Blah, blah. Might as well get back there and do whatever it is I do, but I wish the intestines would stop throwing so much crap my way. I'm surrounded by it. Sheesh.
(Raynaud's info from NIH)
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