Showing posts with label Birthday. Show all posts
Showing posts with label Birthday. Show all posts

Monday, October 12, 2015

The Countdown to His Death. Part 1

This past weekend included my 59th birthday.  It consisted a nice dinner with my dear wife and her sister on Friday. a trip to Broadway to see "Allegiance", and then an amazing lunch at Foley's, the baseball pub Mecca on West 33rd Street, including a wonderful chat with the owner of the pub, who is well known as a baseball fan and collector.  We shared stories of the New York (baseball) Giants, and favorite books about the long gone team.  Then Sunday I soloed to the Ulysses S. Grant Cottage up in the Adirondacks (the smaller version - if you know upstate New York and the Northway used to travel non-stop to Montreal, it's exit 16).




The colors on the trees were worth the trip, especially since I missed the turn to the Cottage.  But I finally found the correct entrance and then I arrived, of course, too late to see much.  I did hear, however, as I reached the cottage (panting) the song Ashokan Farewell (known from the PBS series The Civil War) and watched a Union soldier and his lady waltzing to the music.  Most folks had headed for their cars, but I strolled warm yet cool weather, looking over Civil War books and talking baseball with another history lover.  Following cruising the written history, I took the path to the expansive Lookout area....

The Path
Looking North
                                   
Looking South

General Grant asked to see this view shortly before he died, and he got the chance.  I'm fairly sure that when he looked south, he did not see the Target distribution center, though he did know about targets.

So I sat on a bench that can barely be seen in the Looking North picture, opened my notebook, and wrote two lines.  Book 2 begun.  Felt great.  Birthday good.

But I told you that to tell you about  this....


Saturday, September 19, 2015

Captain Fatigue vs. Me Episode VII - MS Awakens

I'm sitting on my couch watching a baseball game - Red Sox at Toronto.  The Red Sox are winning, which is nice even though the Sox are sitting in the basement of the American League Eastern Division and won't make the playoffs again.

Oh,well.  Red Sox, lately, it's https://youtu.be/D7nb1bgicME

No. Wait.  They just rallied.  Now they're winning. Whoa, they're giving the lead back. Not again!  Oh, never mind.  They held on in the bottom of the ninth.  Whoa.

The above was not what this post, which I am sorely lacking in keeping, was about how you try and have a regular life, but Captain Fatigue always gets his bloviating way in his never ending attempt for bodily domination.

Like having a party.  This year my wife and I celebrated our 30th wedding anniversary and her 60th birthday, plus a noting that 5 years after the diagnosis of PPMS, I'm still here, still standing (though if no one is using that chair, could I borrow it? Thanks) still doing yard work (for maybe 20-25 minutes an hour then one rest and then.... Hey, there's a Star Trek rerun...I'll just watch a few----------------)  and writing ( though I must admit that what your eyes are moving along with here recognizing symbols for sounds which is transformed by your brain as words is all I've done this week).

We've never thrown a party and invited friends and family.  Aside from our wedding, and a small graduation party for my Master's Degree, rarely does everyone appear in the same city, not even mentioning the same room.

And it was a lovely room at a local winery.  This one:





So we provided the funds, they provided the wine and the space, and after going through three possible caterers in one afternoon, we had the place lined up, and guests invited.  The attendees included family, friends and (former) coworkers.  There begins the first line of trepidation of how the mix will go, who will talk to whom, if anyone would or will it be four groups in each corner, eating pizza on paper plates, and waiting for the polite time to leave.  My wife and I did our best to have the place decorated with balloons, Official Jackie and Tom Memorabilia, and small gifts, plus our scintillating personalities.

It would work out fine, I thought.  Or I thought I thought.  But Captain Fatigue had started his whispering crusade.  And he at the best weapon any MSer has - My Twelve Spoons.  If you're unfamiliar with it check here: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

Captain: Did you take your afternoon pills?

Me: Um, yes.

Captain: I heard an "Um" in there.  You're not sure. How about the red one, the long red one?"

Me: Yep, got the Amantadine. (I hope).

Captain:  Look, kid, I've only been living in your brain for five or six years now.  You know the ropes almost as well as me, but you'll never know it all.  So for this special occasion, on account of how much dough you blew on this and the stress of putting on yourself this shindig  (Glad I could be of help, hee, hee)I'm gonna, let's see, three hour party, spoons here, there, oh yeah, crisis there, that's a bit more.  OK, this show and dance is gonna cost you around 13 spoons. And the Amantadine will kick out around 7:30 PM.

Me: 13 spoons? I only get 12 a day. Where's the other one come from?

The Captain in his spiffy naval commander uniform guffawed quietly.

Captain:  Look kid, you belong to that Disney condo thing, right? I haven't had time to check where in the brain you're hiding that info now.  Darn Re-myelination. Anyway, you know if you want to do anything special at DisneyWorld, like the fancy schmancy Grand Floridian Hotel, you gotta use your points for the year, and then borrow points from next year.  Same with Spoons.  You want to do something special? You gotta use the spoons. Your cherce, kid. Or stay home and watch the ballgame.  You can make that early morning meeting you've got.  Me, I gotta get down to your digestive tract and pull some levers. I love lever pulling.  Enjoy, kid.  Oh by the way, you will be so exhausted you won't be able to sleep.  Ain't that weird? Nah, that's MS.

Captain Fatigue was right.  The party was great but I could feel the draining begin around 7:30 PM, and for the last hour just plopped in a chair and visited with folks even my own family and we got through the night with no casualties, and everyone went home happy and with a candle.  We packed up and headed home.

I have never been so tired in my life, so drained, but of course not sleepy at all (like tonight as I'm writing this on Sunday morning at 2:30 AM) and so I remained miserable until felt a Spoon or two click into place.  Low grade moving around Saturday.  Jackie was affected by our collective sigh and availed herself of some naps.  I was looking at a crossword puzzle that Jackie had half finished and I could barely read the clues. The puzzle is still on our coffee table.  I swear Captain Fatigue was jiggling every lever he could find - mass itching, toes won't work, and there seemed to be invisible bricks attached to my legs.  I have never in my life had a hangover. Even in my deepest depression, nothing like this.

But tomorrow, technically Monday September 21, is our actual 30th wedding anniversary. And what a long strange trip it has been. But I have my wondrous partner with me still and much to do, whether Captain Fatigue cares or not.

13,000 views? Wow, thanks for sharing the ride.  Coming Next - how to fall down the steps of the New York Public Library!

Tuesday, August 13, 2013

Not quite home yet....

Over the last two weeks, I’ve been traveling back to Lansingburgh for some weekend get togethers sponsored by the Lansingburgh Historical Society (proud member) and the Lansingburgh Facebook group.  We look back at the “glory days” of the ‘Burgh, and celebrate what is still pretty gosh darn good about the place.


We’ve also published two books of stories about growing up in semi-small town America from the 1940s-1970s, and I am honored to say I have a couple in each.


All proceeds from the purchase of the book(s) go to Lansingburgh non-profits, including the Historical Society.

We held the first get-together earlier this month when the Historical Society celebrated Herman Melville's 194th Birthday at his home in the Burgh. 


That's Herman's house, and the Historical Society keeps it in good shape.  The day we were there presentations were given on portraits of the author (did I mention he wrote Moby Dick which I am sure many of you tried to get out of reading-not that he wrote that tome here, but some other good sea stories) and the relevance of the time, exchanged by enthusiasts of not just Melville, but American history, which so tired us out we had to have more cake.  I was then so high on sugar that I even read some from the Melville mystery story I'm doing, in the same room where the chapter I read takes place in 1838.  By the way, that's Herman's room on the second floor with the bay window.  And the research continues, which keeps me running on days when Bipolar and MS feel like screwing around with my head.

In fact, because I had such an enjoyable time on Saturday, the evil twins made sure I did not enjoy it at all last week, until about Thursday.  Every drop of energy got sucked away into their vortex, and even some quiet outdoorsy pruning and mowing (trying to get the yard in shape by August 31when I used to have it ready by May 31.  I'll finish in time to start raking leaves which I hope to get done by Christmas 2014).  My writer's group got me back in form for a few days until Saturday again this past weekend.

The two groups noted above (LHS/Facebook Burgh) were having a clam steam fundraiser at a local Veteran's organization.  I would know a few people there, maybe even an ex-sweetheart, but I was looking most forward was seeing my sixth grade teacher, and  And I did, from a distance.  The evil twins found that here was a place they could exploit.  The Veteran's building was not there when I lived in the 'Burgh.  As I got of my car I noticed that I did not recognize anyone, except for a few from the historical society.  I've been away from the village for 30 years.  And my belly does a flip flop and fly every time I go there.  

This time I freaked out.  I did not know most of the people and, after I purchased the most recent book, just stood there by the man who had given my change and said he did not do it correctly. He, of course, did and my brain cued into fight or flight. I walked/ran to my car and got out of there, and missed a chance to say thanks to that sixth grade teacher, and visit with the few folks I do know.

And the nightmares have returned.  Reminding me of the awful times in Lansingburgh. My parents, my sister and the loss of family on that side. Like all that work was a waste of time.  This place was nothing but pain and death.  Yep, it was for many years for me, and apparently it still holds my heart and soul somewhat.  But there's work to do.  If I didn't have the Burgh, I wouldn't have the stories.  I was a lucky American kid growing up in a small town, so much so that when I thought of "Downtown" (Petula Clark's song) I thought of downtown Troy.  Why go anywhere else?

So I'll work this through. And keep writing. The Evil Twins can not stop me...for now.  But I've a huge head start, and maybe they won't catch me. Until all the stories are told.

Thanks for reading.  More soon.



Tuesday, October 9, 2012

Happy Birthday to Me for the 55th consecutive year!

Hi.  I'm sitting in the Saratoga Barnes and Noble treating myself to lunch and a mocha before heading down for water therapy.  The sandwhich is quite good.  Had a chance to walk around and check out some new releases (books, not sandwiches). I see J K Rowling's new novel is out.  What? No Harry? No Hermoine? No thanks.  Bill O'Reilly's Killing Kennedy is on the shelves, and I'll save you the money, it follows various possibilities for that tragedy in Dallas, but then defaults to the Warren Commission. I might recommend that we work toward the better world JFK envisioned than just rehash the tawdry events that lead up to Dealey Plaza.  The other books are by TV stars I do not know, monster book writers (books about monsters of all types, and monster sized books) and diet books that always end up selling in the dollar store bins

I walk among the printed words and knick knacks that B and N holds and wonder if the novels I'm working on will ever appear here. Probably not, but I don't care, I am really enjoying the creative process.  Like this. And thanks to a large amount of drugs in my system I can go on and on.  Lucky for you I know when to shut up.

Such is life at age 56.  I was born on October 9 1956 in Troy New York.  Here is the story of my birth.  For those of you not familiar with the Albany Troy Schenectady area, you may still find this interesting if  just for the sitcom value. 

First, the cast of characters:  Marge Martin (mom), Lou Martin (dad [and a tip of the cap to Lou on his 92nd birthday]), Teresa and Jimmy Norton (neighbors), a nurse, and a Freihofer's Bread Company delivery truck, like this one...
 
It may have been red in color, but the size and shape was like that.  Oh, one more person. Me.
 
It starts late on October eighth.  My sister and brother are in bed and my mother is resting with my father before he begins the morning shift at the Freihofer plant, getting his orders for bread, cookies, cakes and placing them on his truck and making deliveries to homes.  Yes, that actually did happen, Gen X and Millenials.  Lou goes to work, taking the only car in the house, leaving my mother and kids alone.  On the first floor rest the Norton's, friends of Marge and Lou, and we are grateful for that.
  
My mother wakes up around two o'clock in the morning.  My father is gone, and she knows the baby (me) is on its way.  Her mother (Grandma Frances) is working at Samaritan hospital back when nurses lived at the hospital. She's not available.  Marge gets out of bed, checks on my soon to be brother and sister, and then creeps downstairs to knock on the door of the Norton's.  The Nortons, alerted earlier they may be needed, are ready.  There's only one problem.  They don't have a car.
 
"But I do thave the truck!," Mr. Norton said as he grabbed his hat.  He indicated the vehicle to my  mother.  A Freihofer's truck (like the one in the picture).  It has one seat for the driver/delivery guy and places to stand and hold on as it hit bumps and swung the curves of old roads for anyone else who was riding.
 
Like my nine month pregnant Mom.  She looked at Mrs. Norton. 
 
"Margie, it'll be fine.  I'll go up with your kids.  Mine are snoring like logs."
 
Mrs. Norton scooted up the stairs, and my mother, for lack of options (no money for a cab), follows along and tries as delicately as possible to find to squeeze in the truck door and then find a spot to sit amongst the coffee cakes, cookies, breads and pies. 
 
"Make yourself ta home," said Mr. Norton as he got the truck started.  Marge chose a spot near the oatmeal raisin boxes and squatted there, holding on to a shelf for balance.  The truck, which never went much more than 30 mph, chugged along to Samaritan hospital up the hill (known to folks in my neck of the woods as Oil Mill Hill) and staggering along the road, a road my father now up in the boondocks for early deliveries, passed hours ago.  He would not know anything until he came home. No phones in vehicles then.
 
So Lou didn't know about the following conversation between my mother, Mr. Norton, and the night nurse as paperwork was completed at Samaritan.
 
 
Nurse: Name?
 
Mom: Marge Martin
 
Nurse: This is Mr. Martin?

 
Mom: No, we're not married.
 
Nurse:Really?
 
Mr. Norton: No, we're married but not to each other.
 
Nurse: I see.
 
Mom: Look, he's just a neighbor.
 
Nurse: So where is your husband?
 
Mom shrugged.  "I don't know.  Brusnwick maybe"
 
Mr. Norton: Yeah.  Brunswick is about right.
 
The nurse put her pen down.
 
Nurse: "Where is the father of the child?"
 
Mom and Mr. Norton: "Brunswick."
 
Fortunately, around this time my grandmother arrived to sort things out and get my mother ready to deliver.  I swear this where I picked up my comic timing.  And I also think the first smell I ever smelled was not the sterility of the delivery room, but oatmeal raisin cookies.
 
Years later, at my father in law's funeral at the veteran's cemetery in Saratoga, my mother was walking among the graves and noticed a familiar name.  She called me over, and pointed to Jimmy Norton's grave. 
 
"They lived downstairs from us." my mother said.  My mother in law came over and said "I know his wife."  It seemed that when our families moved from our original house, the Martin's stayed in Lansingburgh and the Norton's moved to Clifton Park where my wife grew up.  Mrs. Norton met my wife's mom and they became friends.  And so it was that some 45 years after the original event my mom and Mrs. Norton were reunited and relived that amazing day with lots of laughter.
 
I'm the only survivor of that day 56 years ago, so I get to tell the story.  They have been amazing years inbetween with highs and lows, and now the battles are raging within my body.  But I came in with a good story, and I hope I go out with a lot of better ones shared.
 
By the way, the sports fans in the readership may have seen that had I been born on 10/8/56, I would have been born on the day of Don Larsen's perfect game against the Brooklyn Dodgers.  But I held out for the ninth, the day the Dodgers won 13-0.  I've been a National League fan ever since. Imagine if I'd been in a rush? Born on a Yankee day? Wow, things might have been very different. But I know somewhere in a box in the garage is a Yankee cap.  Residual effect. That and oatmeal cookies.
 
More soon.  Thanks for reading.